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Tuesday

 

AVONEX TIP #20

Hi. I have been on Avonex for almost two years now. My last MRI showed no NEW growth to existing lesions and there were no new ones. That is progress. I have stopped taking Avonex in the time I have been on it. I would get so tired of
dreading the side effects but now that I know it works for me for now, I cannot give up. So, side effects. I dread them. I remember reading in the initial information package that one lady said she could take her injection and go on about her day doing things like attending ball games with her children and caring for her family and home. Okay, I am not like that lady as much as I wish I were. There has been help for me though with managing my side effects. I would also like to say that not every shot is ever the same. Some are easy and some aren't.
I plan my shots on Sunday when the family is relaxed and often involved in church activities. My neuro advised the following and it has HELPED me. Thirty minutes prior to my injection, I take one 10 mg Lortab for pain because my back is injured and I can't stand lying still for long. I take one Compazine for nausea and two extra strength Tylenol for ache and fever. I follow up with another Compazine as needed and I take two more Tylenol two hours after the injection. That is normally all it takes to keep things under control.
I still feel aches and cramps in my legs, hands and arms but nothing as severe as I used to have. The nausea is almost non-extinct. The fever and horrible fatigue are just a given so I need to rest. I find that the day following my shot is the worst as far as fatigue so Mondays are my recoup day.
If you can, talk to your neuro about side effect management. It has really helped me not to stop a treatment that I plan to use as long as it keeps working.
Valorie
P.S. AfriendofminewithMSisprescribedasmalldoseinjectionofPredisone prior to injection. She has had some success with it. I cannot however personally advise how this works as I haven't tried it before. 

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